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Rare Disease Day
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101	Rare Disease UK Annual General Meeting: Minutes Wednesday 22nd January 2014 – 10.30am – 1.30pm Royal College of Paediatrics and Child Health Royal College of Paediatrics and Child Health, 5-11 Theobalds Road, London, Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2014-02-12 09:19:22 Nursing research Genetic Alliance UK Rare Disease Day Clinical trial Health Epidemiology Rare diseases
102	The National Alliance for people with rare diseases & all who support them Report of Activity 1st July 2011 to 31st December 2012 Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2013-02-05 11:46:48 Rare diseases National Institutes of Health Rare Disease Day Genetic Alliance UK Disease Pharmaceutical industry RDCRN Contact Registry Health Medicine Epidemiology
103	DATE GOVERNOR’S NAME STATE CAPITOL BUILDING Add to Reading List Source URL: rarediseaseday.us Language: English - Date: 2014-11-04 12:10:14 Rare disease National Institutes of Health Rare Disease Day National Organization for Rare Disorders Canadian Organization for Rare Disorders Health Medicine Epidemiology
104	Annual Report July 2010 June 2011 Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2011-09-29 09:44:37 Rare diseases Genetic Alliance UK Medical terms Rare Disease Day National Health Service Disease Optimising Management of Angina Health Epidemiology Medicine
105	RARE DISEASE DAY RARE DISEASE DAY 2015: FREQUENTLY ASKED QUESTIONS What is a rare disease? In the United States, a disease is considered rare if it is believed to affect fewer than 200,000 Americans. Some other countries Add to Reading List Source URL: rarediseaseday.us Language: English - Date: 2014-11-04 12:09:51 Rare Disease Day National Institutes of Health Medical terms Rare diseases European Organization for Rare Diseases Disease Inborn error of metabolism Orphan drug Health Medicine Epidemiology
106	“European Year for Rare Diseases in 2019” Questions & Answers May 2013 Why a European Year for Rare Diseases? Raising public awareness as well as reaching out to policy makers is one of the main Add to Reading List Source URL: www.eurordis.org Language: English - Date: 2014-09-16 10:55:00 European Organization for Rare Diseases European Union European Year of Intercultural Dialogue Public health European Year for Combating Poverty and Social Exclusion Framework Programmes for Research and Technological Development Rare Disease Day Genetic Alliance UK Health Epidemiology Rare disease
107	The National Alliance for people with rare diseases & all who support them Report of Activity 2013 Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2014-01-27 07:29:00 Rare Disease Day Genetic Alliance UK Health economics National Health Service Public health Health Epidemiology Rare diseases
108	RDUK-Survey-Report-front-cover-1 Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2013-02-25 12:02:52 Genetic Alliance UK Niemann–Pick disease Clinical trial Amyotrophic lateral sclerosis Disease registry Rare Disease Day Clinical surveillance Health Rare diseases Medicine
109	HUGE SUCCESS 2014 Rare Disease Day FIRST OF ALL, Many thanks to all of the patients, families, patient organizations, researchers, clinicians, policy makers, and industry supporters who joined the Canadian Organization f Add to Reading List Source URL: raredisorders.ca Language: English - Date: 2014-04-03 15:33:16 Rare Disease Day Orphan drug Medicine Stem cells Health Canadian Organization for Rare Disorders Rare disease
110	The Food and Drug Administration (FDA) convened its first “fDA Rare Disease Patient Advocacy Day” on March 1, 2012 Add to Reading List Source URL: www.fda.gov Language: English Clinical research Food and Drug Administration Drug discovery Pharmaceuticals policy Pharmaceutical industry Orphan drug Clinical trial Orphan Drug Act Criticism of the Food and Drug Administration Pharmaceutical sciences Pharmacology Health

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